Number
240884
Version
SUBSTITUTE 1
Reference
Sponsor
ALD. STAMPER, PRATT, PÉREZ, ZAMARRIPA, JACKSON AND DIMITRIJEVIC
Title
Substitute resolution appropriating up to $2,000 from the Community and Economic Development Committee Fund for Sickle Cell Awareness Walk 2024.
Analysis
This resolution appropriates up to $2,000 from the Community and Economic Development Committee Fund for the Sickle Cell Awareness Walk 2024, which the non-profit organization Sickle Cell Warriors of Wisconsin will host in Milwaukee on Saturday, October 12, 2024.
Body
Whereas, Sickle Cell Disease is a genetic condition in which red blood cells that “become rigid and deform into a crescent or sickle shape” die early, lodge themselves in small blood vessels, restrict blood flow, and contribute to complications like “anemia, acute and chronic pain, infections, pneumonia and acute chest syndrome, stroke, and kidney, liver, and heart disease”, according to the U.S. Centers for Disease Control and Prevention; and
Whereas, Sickle Cell Trait, which occurs when an individual inherits one sickle cell gene and one normal gene, produces Sickle Cell Disease symptoms in rare instances but may be transmitted to the individual’s children, according to the U.S. Centers for Disease Control and Prevention; and
Whereas, Sickle Cell Disease is “the most common inherited blood disorder in the United States”, according to the CDC Foundation, while estimates reported by the U.S. Centers for Disease Control and Prevention suggest that Sickle Cell Disease affects approximately 100,000 individuals in the United States by reducing their average life expectancy over 20 years relative to the national average; and
Whereas, Estimates further suggest that 90% of individuals with Sickle Cell Disease are non-Hispanic Black or African American, that Sickle Cell Disease occurs in one of 365 African-American births while Sickle Cell Trait occurs in one of 13 African-American births, that approximately 6% of individuals with Sickle Cell Disease are Hispanic or Latino, and that Sickle Cell Disease occurs in one of 16,300 Hispanic births; and
Whereas, A 2022 article in the science and medicine journal PLoS One identifies Sickle Cell Disease patients’ perspectives regarding barriers to care at the individual level (“lack of knowledge in self-management and disease severity”), family/interpersonal level (“inadequate caregiver support and competing life demands”), provider level (“limited provider knowledge, provider inexperience, poor provider-patient relationship, being treated differently, and the provider’s lack of appreciation of the patient’s SCD knowledge”), and socio-environmental/organizational level (“limited transportation, lack of insurance, administrative barriers, poor care coordination, and reduced access to care due to limited clinic availability, services provided or clinic refusal to provide SCD care”); and
Whereas, Seventy-one percent of the 147 babies born with Sickle Cell Disease in Wisconsin from 2016 to 2022 were born in Milwaukee County, according to the Sickle Cell Data Collection Program in Wisconsin; and
Whereas, Sickle Cell Warriors of Wisconsin is a Milwaukee-based 501(c)(3) non-profit organization “dedicated to advocating, educating, and providing compassionate support to individuals and families affected by Sickle Cell Disease […] and Sickle Cell Trait”; and
Whereas, Sickle Cell Warriors of Wisconsin is organizing and hosting the 1k/3k Walk to Break the Sickle Cycle from 9 AM to 1 PM on Saturday, October 12, 2024, starting at 500 North Harbor Drive in Milwaukee; and
Whereas, This event is aimed at “raising awareness and funding for individuals in Wisconsin dealing with the daily struggles of Sickle Cell Disease”; now, therefore, be it
Resolved, By the Common Council of the City of Milwaukee, that the City Clerk is to expend up to $2,000 from the Community and Economic Development Committee Fund Special Purpose Account No. 0001-1310-S123-006300 to support Sickle Cell Awareness Walk 2024.
Requestor
Drafter
Ned Littlefield
LRB180210-2
09/24/2024